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Informational Links

Click on one of the topics below to access a list of websites with related information.
Note: The links on this page are provided as a resource. Pharmacy Alternatives assumes no responsibility for the quality or accuracy of the content to be found on the websites listed.

Quick Links for Nurses
Associations, Foundations, and Organizations
Conditions, Diseases, and Disorders
Disabilities
Governmental Agencies
Medical and Health Information / Education
Medical Equipment, Products, and Supplies
Reverse Distributor Information


Quick Links for Nurses

Autism & DD: Teaching, Learning, and Growing Sites

AIMS (Abnormal Involuntary Movement Scale) Assessment & Instructions for Use
http://www.cqaimh.org/pdf/tool_aims.pdf

Anti-Seizure Medications & Side Effects List
http://www.efwp.org/programs/side_effects.shtml

Clozaril Monitoring Education Sheet

Sensory Flow - an online magazine for all things sensory
www.SensoryFlow.com

Use Visual Strategies
www.UseVisualStrategies.com

TeachingTools.net
www.TeachingTools.net

2012 CDC Recommendations for Vaccinations & Vaccination Schedules
http://www.cdc.gov/vaccines/recs/schedules/adult-schedule.htm#chgs

Common Medical Tests
http://www.merck.com/mmhe/appendixes/ap2/ap2a.html

Confused Drug Name List
http://www.ismp.org/Tools/confuseddrugnames.pdf

Do Not Crush List
http://www.ismp.org/Tools/DoNotCrush.pdf

End of Life Clinical Assessment Tools List http://www.promotingexcellence.org/i4a/pages/Index.cfm?pageID=3586
Learn about End of Life care, find a provider, Advance Directives, Hospice info, palliative care, caregiving, pain, grief, financial planning, how to select a hospice program, webcasts and audio recordings of end of life programs available at a minimal cost at this site.

Error-Prone Abbreviation List
http://www.ismp.org/Tools/errorproneabbreviations.pdf

Eliminating Error-Prone Abbreviations PowerPoint presentation

http://www.ismp.org/Tools/abbreviations/abbreviationSlides.ppt#843,1,
This presentation is ready to go for training your nurses, staff, and others who need to know this information.

Formulary Finder for PDPs (prescription drug plans) http://formularyfinder.medicare.gov/formularyfinder/selectstate.asp
This will list all of the approved Drug Plans for the state you choose and give contact information for each plan with hours of availability.

Your state prescription drug plans
http://www.medicare.gov/MPDPF/Public/Include/DataSection/Questions/
SelectCounty.asp

By putting in your county or state at this site, you can get information about monthly premiums, annual deductibles, coverage during the gap issues, and contact info. A little more extensive information than in formulary finder above.

Global RPh
http://health.globalrph.com/
Diseases, conditions, symptom checker, drug lookout by class, Stress quiz, alcohol use assessment, cold or flu calculator, heart disease risk calculator, body mass index calculator, support groups listed by state, tests and procedures explained.

Guideline Clearinghouse, The National (NGC)
http://www.guidelines.gov/browse/browsemode.aspx?node=29298&type=1 is a comprehensive database of evidence-based clinical practice guidelines and related documents. NGC is an initiative of the Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health and Human Services. NGC was originally created by AHRQ in partnership with the American Medical Association and the American Association of Health Plans.

High Alert Medication List
http://www.ismp.org/Tools/highalertmedications.pdf
This is a list of medications that can cause significant harm to a patient if not given correctly.

HIPPA (Health information Portability and Accountability Act)
http://www.hhs.gov/ocr/privacy/

How Do I Say It?
http://www.merck.com/mmhe/resources/pronunciations/index/a.html
Great site where difficult medical terms are actually spoken so you can hear how to pronounce them!

Immunization Schedules from the CDC
(http://www.cdc.gov/vaccines/recs/schedules/child-schedule.htm#hcp)
* Child, Adolescent, Adult, and Catch-up Schedules you can print off for all immunizations including Hep B

Interactive Health Tutorials for Diseases and Procedures
http://www.nlm.nih.gov/medlineplus/tutorial.html

List of 600+ medications containing Acetaminophen
http://www.getreliefresponsibly.com/pdfs/acetaminophen-containing-medicines.pdf

New Drug Approvals + Drug Monographs
http://www.globalrph.com/new_drug_index.htm

Newly Approved Drug List by the FDA
http://www.centerwatch.com/patient/drugs/druglist.html
These are listed by year and general category of drug (Neurology, Cardiology, etc.).

Psychotropic Medications & their Side Effects List
http://www.psych.uic.edu/csp/DCFS_Psychotropic_Medication.pdf

Poison Control Centers, American Association of
http://www.aapcc.org/

State Nurses Associations
www.nurseshouse.org/links.html
Links for all states

Vaccines & Immunizations
http://www.cdc.gov/vaccines/pubs/vis/default.htm
This site has great training information on every vaccine you can think of. Find info sheets, text-only sheets, info in other languages, PowerPoint presentations, and presentations with audio trainings on Hepatitis A, Hepatitis B, influenza, Tdap, Zoster, Pneumococcal, Human Papillovirus, MMR, and more!


Associations, Foundations, and Organizations

Alliance for Technology Access
www.ataccess.org

Alzheimer's Association
www.alz.org/index.asp

AAIDD (American Association of Intellectual and Developmental Disabilities-formerly AAMR)
www.aaidd.org
Policy, training and education, publications on I/DD

American Association of Poison Control Centers
www.aapcc.org

American Council on Exercise
www.acefitness.org
Get tips on combining mind and body workouts.

American Diabetes Association
www.diabetes.org

American Dietetic Association
www.eatright.org
You can design a personalized nutrition and weight plan, find a dietician near you or consult online.

American Geriatrics Society
www.healthinaging.org/agingintheknow/chapters_ch_trial.asp?ch=4
Good information about ethical and legal issues, the aging process, health trends as we age, physical activity, prevention, informed consent, advance directives, rehabilitation, palliative care, pain management, elder mistreatment, complementary medicine, alternative medicine.

American Lung Association
www.lungusa.org

ANCOR Foundation (American Network of Community Options and Resources)
www.ancor.org
The ANCOR Foundation is an organization created to support the development of innovative programs and disseminate information that will improve the quality of life for people with disabilities. These activities may include case studies, surveys, evaluations, demonstrations and other forms of applied research.

American Occupational Therapy Association (AOTA)
www.aota.org

American Parkinson's Disease Association
www.apdaparkinson.com

American Physical Therapy Association (APTA)
www.apta.org

American Society for Parenteral & Enteral Nutrition
www.clinnutr.org

American Speech-Language-Hearing Association
www.asha.org
Learn about hearing and balance, screening, treatment, rehab, hearing options, and funding resources for hearing appliances. A HEARING SELF-TEST to find out if you need a hearing evaluation is included on the site. Information about typical speech and language development, swallowing and feeding, and health coverage.

American Stroke Association
www.strokeassociation.org

Angelman Syndrome Foundation
www.angelman.org

Anxiety Disorders Association of America
www.adaa.org

The ARC of the United States
www.thearc.org/NetCommunity/Page.aspx?&pid=183&srcid=-2
A key national organization dedicated to the betterment of the lives of those diagnosed with developmental disabilities in the areas of public policy, research, information, outreach and support. This site contains Position Statements about Individual Rights, Quality of Life issues, Life in the Community, and Systems that interface with the lives of those with DD.

Asperger Syndrome Education Network (ASPEN®)
www.aspennj.org

The Association for Frontotemporal Dementias
www.ftd-picks.org

The Association for the Severely Handicapped
www.tash.org

AUCD (Association of University Centers on Disabilities)
www.aucd.org/template/index.cfm
A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

Autism Society of America
www.arutism-society.org

Center for Food-Drug Interaction Research and Education
wwwdruginteractioncenter.org

Children and Adults with Attention Deficit /Hyperactivity Disorder
www.chadd.org
The nation's leading non-profit organization serving individuals with AD/HD and their families. The national organization has science and evidence-based information on AD/HD. Learn about myths, evaluation, diagnosis, and treatment options, co-occurring conditions and genetic factors.

Children's Craniofacial Association
www.ccakids.com

Chronic Fatigue and Immune Dysfunction Syndrome Association
www.crids.org

Clearinghouse for Community Living Exchange
www.hcbs.org
Home and Community Based Services nationwide; look up by state.

Cleft Advocate
www.cleftadvocate.org

Cornelia de Lange Syndrome Foundation
http://wwwaan.com

Cystic Fibrosis Foundation
www.cff.org

Developmental Disabilities Nurses Organization (DDNA)
www.ddna.org
The site for this national organization provides over 400 hours of CEU opportunities to members.

Hospice and Palliative Care Organization, National (NHPCO)
www.nhpco.org/templates/1/homepage.cfm

Hydrocephalus Association

www.hydroassoc.org

Institute for Patient Rights
www.empowerpatients.com
A great site for clients to use as well as nurses and staff. You can sign up for a FREE subscription to the magazine "Empower Patients" which comes periodically via email. It has an Empowerment BLOG for those who are computer-savvy, where you can get feedback about how to deal with problems within the healthcare system, like how to communicate with your healthcare provider, resolve medical conflicts between doctor/patient, etc. It has education on Patient Rights, HIPAA, and other neat topics.

Institute for Safe Medication Practices
www.ismp.org
Medication safety tools and resources, educational programs, medication alerts, industry resources.

Learning Disabilities Association of America (LDA) 
www.ldanatl.org

Lewy Body Association
www.lewbybodydementia.org

National Alliance for the Mentally Ill
www.nami.org

NADD (National Association for the Dually Diagnosed)
www.thenadd.org
NADD is an expert in providing professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities.

National Association of QMRPs
www.qmrp.org

National Depressive and Manic Depressive Association
www.ndmada.org

National Down Syndrome Society
www.ndss.org

The National Fragile X Foundation
www.nfxf.org

The National Information Center for Children and Youth with Disabilities
wwwnichcy.org
The national information and referral center that provides information about disabilities and related issues for families, educators, caregivers, and other professionals. Focus is on children ages birth to age 22.

National Organization for Fetal Alcohol Syndrome (NOFAS)
www.nofas.org

The National Spinal Cord Injury Association
www.spinalcord.org

National Stuttering Association
www.nsastutter.org

Prader-Willi Syndrome Association
www.pwsausa.org

Special Olympics
www.specialolympics.org

Spina Bifida Association of America
www.sbaa.org

Tourette Syndrome Association
www.tsa-usa.org

UCP (United Cerebral Palsy)
www.ucp.org
United Cerebral Palsy (UCP), one of the largest health charities, is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability.

Vaccines & Immunizations
www.cdc.gov/vaccines/pubs/vis/default.htm
This site has training information on many vaccines; including, info sheets, text-only sheets, info in other languages, Power point presentations, and some with audio training as well.
HEPATITIS A, HEPATITIS B, INFLUENZA, TDAP, ZOSTER, PNEUMOCOCCAL, HUMAN PAPILLOVIRUS, MMR, more!


Conditions, Diseases, and Disorders

Aging: Center for Aging
wucfa.wustl.edu

Allergy, Asthma, and Immunology, American Academy of
www.aaaai.org
Contains Fact Sheets on a variety of allergy topics, a monthly special topic of focus, find an allergist or immunologist in your area, look up pollen counts, diseases, and learn in depth about all of the medications used to treat these conditions.

Alzheimer's Association
http://www.alz.org

Ambry Genetics is a worldwide leader in genetic testing. They provide DNA sequence analysis and interpretation to help diagnose and plan for future supports for your consumers. Ambry's XLMR SuperPanel detects genetic variants in all of the genes known to be associated with XLMR.
(www.ambrygen.com)
Phone: 949.900.5560

Angelman Syndrome Foundation
www.angelman.org

Arthritis and Musculoskeletal and Skin Diseases, National Institute of
www.niams.nih.gov

Asperger Syndrome Education Network (ASPEN®)
www.aspennj.org

Attention Deficit / Hyperactivity Disorder: Children and Adults with Attention Deficit /Hyperactivity Disorder
www.chadd.org
The nation's leading non-profit organization serving individuals with AD/HD and their families. The national organization has science and evidence-based information on AD/HD. Learn about myths, evaluation, diagnosis, and treatment options, co-occurring conditions and genetic factors.

Autism Spectrum Disorder
www.autismspeaks.org/video/glossary.php
Dozens of video clips of different children with a wide range of autism's features. This would be beneficial for using in training staff, nurses, or others new to the DD field.

Blindness: American Council of the Blind
www.acb.org

Blood Disorders
www.merck.com/mmhe/sec14.html

Brain, Spinal Cord, and Nerve Disorders
www.merck.com/mmhe/sec06.html

Cerebral Palsy: United Cerebral Palsy Association
www.ucpa.org
United Cerebral Palsy (UCP), one of the largest health charities, is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability.

Chronic Fatigue and Immune Dysfunction Syndrome Association
www.crids.org

Cleft Advocate
www.cleftadvocate.org

Cornelia de Lange Syndrome Foundation
http://wwwaan.com

Craniofacial: Children's Craniofacial Association
www.ccakids.com

Cystic Fibrosis Foundation
www.cff.org

Deafness: Registry of Interpreters for the Deaf
www.rid.org

Dementia: Frontotemporal Dementias, Association of,
www.ftd-picks.org

Depression / Manic Depression:
National Depressive and Manic Depressive Association
www.ndmada.org

Diabetes: American Diabetes Association
www.diabetes.org

Diabetes & Digestive & Kidney Disorders, National Institute of
www.niddk.nih.gov

Digestive Disorders
www.merck.com/mmhe/sec09.html

Eating Disorders
www.eating-disorder.com

Epilepsy: Accommodation Ideas for Employees with Epilepsy
www.jan.wvu.edu/media/Epilepsy.html

Epilepsy 101

www.epilepsyfoundation.org/about/index.cfm

Epilepsy Foundation
www.efa.org

Eye Disorders
www.merck.com/mmhe/sec20.html

Fetal Alcohol Syndrome, National Organization (NOFAS)
www.nofas.org

Fragile X, National Foundation
www.nfxf.org

The Genetic and Rare Diseases Information Center
rarediseases.info.nih.gov/GARD/Default.aspx?PageID=4

Global Health Facts
www.globalhealthfacts.org
Information about TB, diseases, conditions

Head Injury: National Head Injury Foundation
www.biausa.org

Hearing loss: American Speech-Language-Hearing Association
www.asha.org
Learn about hearing and balance, screening, treatment, rehab, hearing options, and funding resources for hearing appliances. A HEARING SELF-TEST to find out if you need a hearing evaluation is included on the site. Information about typical speech and language development, swallowing and feeding, and health coverage.

Heart: American Heart Association
www.americanheart.org

Hormonal Disorders
www.merck.com/mmhe/sec13.html

Hydrocephalus Association
www.hydroassoc.org

Immune Disorders
www.merck.com/mmhe/sec16.html

Learning Disabilities Association of America (LDA)
www.ldanatl.org

Lewy Body Association
www.lewbybodydementia.org

Lung Disease: American Lung Association
www.lungusa.org

Lymphedema, National Network
www.lymphnet.org

Mental Illness: National Alliance for the Mentally Ill
www.nami.org

Metabolic and Nutritional Disorders
www.merck.com/mmhe/sec12.html

Movement Disorders in Individuals with Developmental Disabilities www.emedicine.com/neuro/topic553.htm

NIH Office of Rare Diseases (ORD)
rarediseases.info.nih.gov

National Down Syndrome Society
www.ndss.org

National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov/index.htm
Detailed descriptions of disorders from A-Z, news stories, related studies, finding clinical trials.

National Organization for Rare Diseases (NORD)
www.rarediseases.org

Neurogenerative Disorders, Hope Center for
hopecenter.wustl.edu/index.html

Neurofibromatosis Foundation
www.nf.org

Obsessive Compulsive Disorders
www.ocfoundation.org

Osteoporosis, National Foundation
www.nof.org

Parkinson's Disease: American Parkinson's Disease Association
www.apdaparkinson.com

PKU (Phenylketonuria: Screening and Treatment)

consensus.nih.gov/2000/2000Phenylketonuria113html.htm

PKU: University of Washington PKU Clinic

depts.washington.edu/pku/

Prader-Willi Syndrome Association
www.pwsausa.org

Spina Bifida Association of America
www.sbaa.org

Spinal Cord Injury, National Association
www.spinalcord.org

Stroke: American Stroke Association
www.strokeassociation.org/

Stuttering Association, National
www.nsastutter.org

Tay-Sachs Disease
www.ninds.nih.gov/disorders/taysachs/taysachs.htm

Tourette Syndrome Association
www.tsa-usa.org

TB Education & Resources for Health Professionals www.cdc.gov/tb/pubs/Posters/Mantoux.htm
Publications, slides for teaching, CDC Guidelines and Fact Sheets. Another site for info: www.findtbresources.org/scripts/index.cfm

Tuberous Sclerosis
http://www.kumc.edu/gec/support/tuberous.html

Williams Syndrome Association
www.williams-syndrome.org


Disabilities

AAIDD (American Association of Intellectual and Developmental Disabilities-formerly AAMR)
http://www.aaidd.org/
Policy, training and education, publications on I/DD.

All States' I/DD Agencies
http://www.nasddds.org/MemberAgencies/index.shtml

ADA (Americans with Disabilities Act)
http://www.usdoj.gov/crt/ada/adahom1.htm

The ARC of the United States
http://www.thearc.org/NetCommunity/Page.aspx?&pid=183&srcid=-2
A key national organization dedicated to the betterment of the lives of those diagnosed with developmental disabilities in the areas of public policy, research, information, outreach and support. This site contains Position Statements about Individual Rights, Quality of Life issues, Life in the Community, and Systems that interface with the lives of those with DD.

The Association for the Severely Handicapped
http://www.tash.org/

AUCD (Association of University Centers on Disabilities)
http://www.aucd.org/template/index.cfm
A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

CHADD
(www.chadd.org)
Children and Adults with Attention Deficit/Hyperactivity Disorder

DDINFOSource
http://www.iidc.indiana.edu/training/
A great site with many quality educational resources in the areas of Behavior Supports, Health & Safety, Quality of Life, Self-determination, Supports & Therapies, Mental Health, Quality Assurance, Person Centered Planning, Resources for Nurses, Resources for Case Managers, Resources for Behavior Consultants, Direct Support Professionals Info, presentations, downloadable forms, and web trainings.

Developmental Disabilities Nurses Organization (DDNA)
www.ddna.org
The site for this national organization provides over 400 hours of CEU opportunities to members.

Disability Resources, Inc.
http://www.disabilityresources.org/
Information on anything and everything from assistive technology, home modifications, medical issues, rights, doctor finder, famous people with disabilities, housing, humor, statistics, plus the Independence Journal Radio Show!

Enabling Devices
http://enablingdevices.com/catalog
Enabling Devices is a company dedicated to developing affordable learning and assistive devices to help people of all ages with disabling conditions.

High Tide Press
www.hightidepress.com
Publications, training materials, and other resources for those in the developmental disabilities field and interested others.

IDEA (Individuals with Disabilities Education Act)http://www.ed.gov/offices/OSERS/IDEA/index.html and http://www.ideapractices.org

Inclusion Daily
http://www.inclusiondaily.com/
International disability rights news straight to your email. Requires a subscription. Also has a free trial period.

International Journal of Nursing in Intellectual and Developmental Disabilities
http://journal.hsmc.org/ijnidd/
Online access to articles related to the DD field and nursing!

Museum of Disability History chronicles 3 generations of activism to increase awareness and opportunities for individuals with developmental disabilities. The incredible influence of the Kennedy family in Disability History is highlighted.
(www.museumofdisability.org)

National Association of Councils on Developmental Disabilities
http://www.nacdd.org/

National Council on Disability
http://www.ncd.gov/index.html
The Bulletin, which is free of charge and at NCD's award-winning Web site (www.ncd.gov), brings you the latest issues and news affecting people with disabilities. To subscribe to the NCD listserv, go to http://listserv.access.gpo.gov, click on Online mailing list archives, select NCD-NEWS-L, click on Join or leave the list, then complete the short subscription form.

National Down Syndrome Society
http://www.ndss.org

The National Information Center for Children and Youth with Disabilities
http://wwwnichcy.org
The national information and referral center that provides information about disabilities and related issues for families, educators, caregivers, and other professionals. Focus is on children ages birth to age 22.

PTIP (Parent Training and Information Projects)
http://www.taalliance.org/centers/index.htm
The Technical Assistance Alliance for Parent Centers is an innovative project that supports a unified technical assistance system for the purpose of developing, assisting and coordinating Parent Training and Information Projects and Community Parent Resource Centers under the Individuals with Disabilities Education Act (IDEA).

Program Development Associates 2008-2009 Catalog
www.DisabilityTraining.com
(Items listed are for purchase.)
A phenomenal resource to families, nurses, direct support professionals, physicians and others who work with and support individuals with developmental disabilities.

The Social Security and Supplemental Security Disability Programs
http://www.ssa.gov/disability/

Special Olympics
http://www.specialolympics.org

UCLA Mental Retardation Research Center
http://www.mrrc.npi.ucla.edu
The UCLA MRRC is a multidisciplinary research organization whose purpose is to provide new knowledge concerning the understanding and treatment of Mental Retardation and Developmental Disabilities (MRDD).

WeMedia
http://www.wemedia.com/
A website that is a resource for people with disabilities, providing information on technology, advocacy, employment, education, finance, and travel among other things.


Governmental Agencies

Alzheimer's Disease Education and Referral Center/National Institute on Aging
http://www.nia.nih.gov/alzheimers

American Fact Finder (U.S. Census Bureau)
http://factfinder.census.gov/home/saff/main.html?_lang=en
Search a huge database using criteria of your choice to get statistical info.

ADA (Americans with Disabilities Act)
http://www.usdoj.gov/crt/ada/adahom1.htm

Arthritis and Musculoskeletal and Skin Diseases, National Institute of
www.niams.nih.gov

Cancer Institute, The National
http://www.nci.nih.gov/cancertopics/literature

Centers for Disease Control (CDC)
http://www.cdc.gov/
A good resource to use for training information for your staff because it will be recognized by surveyors, physicians, etc., anywhere as reliable, valid information based in research. The CDC has information on every health topic imaginable, printable educational materials and publications, and podcasts to watch online. Topics change for these periodically but are the newsworthy medical and health issues of the day.

Center for Drug Evaluation & Research
http://www.fda.gov/cder
Drug information, consumer education, safety podcasts, and drug shortages.

Center for Food Safety & Applied Nutrition
http://www.cfsan.fda.gov/list.html
A variety of good information on Food-borne Illnesses, Food Defense & Terrorism, Food Safety, Inspections, Recalls, Labeling & Nutrition, Dietary Supplements, Medical Foods, also some Food Safety Videos via link.

Centers for Medicare & Medicaid Services (CMS)
http://www.cms.hhs.gov/
The "go-to" site for answering all of your questions about Medicare programs and Medicaid. Regulations & Guidance, HIPAA, forms, Dual Eligible information, and Prescription Drug Plans.
The CMS Quarterly Provider Update
http://cms.hhs.gov/providerupdate/
ICF/MR programs info at http://cms.hhs.gov/medicaid/icfmr/default.asp
Medicare http://cms.hhs.gov/medicare/
Medicaid http://cmshhs.gov/medicaid/
Laws and Regulations http://www.hcfa.gov/regs/
MyMedicare.gov Access to your personal benefit info 24/7. View claims, get online forms.

 Drug Enforcement Agency (DEA) Controlled Substances Act http://www.usdoj.gov/dea/pubs/csa.html
Lists Schedules of Controlled Drugs, required labeling, packaging, recordkeeping.

FDA Office of Orphan Products Development (OOPD)
www.fda.gov/orphan/
This site is the FDA division that supports development of medications and medical devices for rare diseases and disorders that affect a limited number of people.

Federal Statistics
http://www.fedstats.gov/
This is the gateway to statistics from over 100 federal agencies.

Health & Human Services, U.S. Department of
http://www.hhs.gov/
Reference collections of the most difficult to find medical terminology. There is a Dictionary of Cancer Terms, Diabetes Dictionary, Kidney Disease Dictionary, Mental Health Dictionary, Medical Dictionary & Journal, and more!  Drug and food information, diseases and conditions, aging, disaster preparedness, special populations, families and children, and more to cruise through.

IDEA (Individuals with Disabilities Education Act) http://www.ed.gov/offices/OSERS/IDEA/index.html and http://www.ideapractices.org

Medline Plus
www.nlm.nih.gov/medlinepluse/tutorials.html
WOW! You will love this one! It has Interactive Health Tutorials on hundreds of subjects that would be very useful to you for training direct support staffs, nurses, and consumers and families. You can find information on diseases, prevention, wellness, surgery, treatment procedures, labs, and diagnostic tests, and you can download FLASH player to view actual procedures. A very reputable site for getting your training information since it is developed by the National Institutes of Health. You will also find a Medical Encyclopedia and a Medical Dictionary; directories to find physicians, hospitals, and dentists; and information about drugs and other supplements.

Medwatch
http://www.fda.gov/medwatch/
Safety information and adverse event reporting, information on medical products, new medications, alerts, recalls. There are video tutorials on a variety of medical topics.

National Council on Disability
http://www.ncd.gov/index.html
The NCD is an independent agency that makes recommendations to the government to improve the quality of life for people with disabilities in the U.S. They promote policies to empower individuals to lead healthy lives.

National Institutes on Drug Abuse
http://nida.nih.gov/

National Institutes of Health
http://www.nih.gov/
A great site for Nurses to find educational resources, health & medical photos, medical news topics, information on clinical research trials, and Health Information A-Z

National Institutes on Mental Health
http://www.nimh.nih.gov/

National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/index.htm
Detailed descriptions of disorders from A to Z, news stories, related studies, finding clinical trials.

NIH Office of Rare Diseases (ORD)
http://rarediseases.info.nih.gov

National Library of Medicine
http://www.nlm.hij.gov/
This site has online exhibitions, human genome resources, and information on environmental health, among other topics.

National Library Service (NLS)
http://www.loc.gov/nls/
Administers a FREE library program for those who are blind and physically handicapped . They have a program of braille and recorded materials that can be borrowed by eligible borrowers via postage-free mail through a network of cooperative libraries. They have foreign language books and recordings also.

OSHA (Occupational Safety and Health Administration)
www.osha.gov
1-800-321-6742

Social Security Administration
http://www.ssa.gov

Social Security website in Spanish
http://www.ssa.gov/espanol/

USDA Nutrient Database
www.ars.usda.gov/foodsearch
What's in the Foods You Eat Search Tool includes nutrient components of over 13,000 commonly eaten foods, basic portion sizes, etc.

The U.S. Environmental Protection Agency
http://www.epa.gov/osw/

The Whitehouse & U.S. Federal Government
www.whitehouse.gov/
Keep up on healthcare and disability issues via news releases and speeches easily accessible at this site.


Medical and Health Information / Education

Alzheimer's Disease Education and Referral Center/National Institute on Aging
http://www.nia.nih.gov/alzheimers

Anatomical Charts, Models, and Teaching Aids
www.Anatomical.com/

Anatomical Drawings (Merck site)
http://www.merck.com/mmhe/resources/cp1/index.html

Bio-medicine
http://www.bio-medicine.org/Medicine-Dictionary/
A Medical Dictionary which includes diseases, conditions, procedures, tests, a listing and description of medical products, biological products and technological products in each category.

Birth Control Methods
http://www.4woman.gov/faq/birthcont.htm

Brookes Publishing is a leading publisher of resources on disabilities, autism, communication. early intervention, behavior, mental health, and other issues related to DD. Visit this site for the DD resources you're looking for!
(www.brookespublishing.com)

Coping & Stress
http://www.coping.org/coping/intror.htm
Onsite manuals for coping with a variety of life's stressors.

DDINFOSource

http://www.iidc.indiana.edu/training/
A great site with many quality educational resources in the areas of Behavior Supports, Health & Safety, Quality of Life, Self-determination, Supports & Therapies, Mental Health, Quality Assurance, Person Centered Planning, Resources for Nurses, Resources for Case Managers, Resources for Behavior Consultants, Direct Support Professionals Info, presentations, downloadable forms, and web trainings.

Disabilities
Books on disabilities for parents, teachers, healthcare professionals and others interested in developmental disabilities issues.
www.woodbinehouse.com

Drug Information Site

www.subscriberx.com/ighealth/druginfostart.hml

End of Life Clinical Assessment Tools List http://www.promotingexcellence.org/i4a/pages/Index.cfm?pageID=3586
Learn about End of Life care, find a provider, Advance Directives, Hospice info, palliative care, caregiving, pain, grief, financial planning, how to select a hospice program, webcasts and audio recordings of end of life programs available at a minimal cost at this site.

Environmental Health Perspectives
www.ehponline.org/
This journal gives you access to the most up-to-date information about environmental issues and how these affect human health. Free downloadable articles.

Exercise, American Council on
www.acefitness.org
Get tips on combining mind and body workouts.

Health Education - Podcast Archives
http://www.nih.gov/news/radio/podcast/nihpodcastarchive.htm
Podcasts on every health issue you can imagine at this site of the National Institutes of health

Institute for Patient Rights
http://www.empowerpatients.com/
A great site for clients to use as well as nurses and staff. You can sign up for a FREE subscription to the magazine "Empower Patients" which comes periodically via email. It has an Empowerment BLOG for those who are computer-savvy, where you can get feedback about how to deal with problems within the healthcare system, like how to communicate with your healthcare provider, resolve medical conflicts between doctor/patient, etc. It has education on Patient Rights, HIPAA, and other neat topics.

Mayo Clinic
http://www.mayoclinic.com
Disease and Symptom checker, educational info, health & fitness, smoking cessation, handling medical emergencies, health videos that alternate topics.

Med-Pass
www.med-pass.com
Has a variety of training resources (in-service training programs for skin & wound care, prevention of falls, etc.), reference materials (such as ICF-MR Rules, Regs, and Guidelines, Policy & Procedure manuals, etc.), documentation forms commonly used in Long Term Care. All items are for purchase.

Mental Health America
www.mentalhealthamerica.net/go/stress

Merck Manual Interactive Education
http://www.merck.com/mnhe/resources/multimedia/index.html
You will find LOTS of videos on health topics. Also mental illness information.

Library of Medicine, The National
http://www.nlm.nih.gov/
This site gives you access to over 17 million citations in medical publications to look up and read about any medical issue your heart desires.

Oral Health and the Dangers of Tobacco
www.ada.org/public/topics/smoking_tobacco.asp#videos
Good training materials in the form of online videos at this site.

PTIP (Parent Training and Information Projects)
http://www.taalliance.org/centers/index.htm
The Technical Assistance Alliance for Parent Centers is an innovative project that supports a unified technical assistance system for the purpose of developing, assisting and coordinating Parent Training and Information Projects and Community Parent Resource Centers under the Individuals with Disabilities Education Act (IDEA).

Parenteral & Enteral Nutrition, American Society for
www.clinnutr.org

Patient Education New Drug printouts
ndhnow.com/ptnewdrugshome.htm

PDR.net
www.pdr.net/Home/Home.aspx
Gives you FREE access to an online Physicians' Drug Reference, a multi-drug interaction checker, new updates, clinical guidelines, and patient education resources.

Pharmaceutical Company Virtual Library
www.pharmacy.org/company.html
A virtual library of pharmaceutical links from A to Z.

Physical Fitness and Exercise
www.cdc.gov/nccdphp/dnpa/physical/index.htm

Prenatal Testing
kidshealth.org/parent/system/medical/prenatal_tests.html
This site lists all the prenatal tests, why they are done, what results will reveal, etc.

Program Development Associates 2008-2009 Catalog
www.DisabilityTraining.com
(items listed are for purchase)
A phenomenal resource for families, nurses, direct support professionals, physicians and others who work with and support individuals with developmental disabilities.

Quick Health Data Online
www.healthstatus2010.com/owh/index.html
At this site you can use the data system to pull health information based on geographic area as specific as by county (for any state). There is data related to gender, race and ethnicity and it comes from a variety of national and state sources. The system is organized into eleven main categories, including demographics, mortality, reproductive health, violence, prevention, disease and mental health. Within each main category, there are numerous subcategories. You can organize the information you want into graphs or other pictorial representations for analysis. It includes a tutorial on how to do all of this fancy stuff.

Rehabilitation: National Clearinghouse of Rehabilitation Training Materials
http://ncrtm.org/
Collects and distributes a huge variety of training materials such as participant and trainer manuals, videos, syllabi and curricula from publicly funded rehab programs for practitioners.

Smoking Cessation
www.cdc.gov/tobacco/how2quit.htm
The CDC Smoking Cessation page has materials and counseling you can download. These are in an easy to understand format.

Stem Cell Research at the National Institutes of Health site
http://stemcells.nih.gov/
Learn what's going on in the latest stem cell research, what the U.S. policy is on this, and how it may affect those with disabilities in the future.

USDA Nutrient Database
www.ars.usda.gov/foodsearch
What's in the Foods You Eat Search Tool includes nutrient components of over 13,000 commonly eaten foods, basic portion sizes, etc.


Medical Equipment, Products, and Supplies

Medical Equipment Suppliers, National Association of
www.aahomecare.org

Medline Industries, Inc.
www.medline.com
Medical product suppliers including durable medical supplies, all health and homecare medical supplies.


Reverse Distributor Information

U.S. Department of Justice Reverse Distributor Registrants Table for all states (updated December 2006)
www.iisgcp.org/unwantedmeds/updatedToolkitMaterials/
3.3a%20RevDistrDirectory.pdf

Guaranteed Returns
www.guaranteedreturns.com
One of the pharmaceutical industry's leading reverse distributors. Phone number is 1-800-473-2138. Address: 100 Colin Drive, Holbrook, NY, 11741-4308.