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The links below are provided as a service to our customers. Please check this page periodically for information on new articles, studies, and research topics.

Evidence-Based Research

Evidence-Based Research (EBM) is used to create guidelines for practice in a given area and can also be called clinical practice guidelines. When reading and interpreting research, it is important to understand what to look for. There are certain aspects of research that can cause it to be considered more or less valid. These first few links will provide you with some information on Evidence-Based Research and how to find it and evaluate it, so that you can be an educated interpreter.

1. Introduction to Evidence-Based Medicine
This tutorial would be beneficial for any healthcare practitioner who needs a Basic introduction to the principles of EBM. This web addresses links to Duke University Medical Center Library & Health Sciences Library, University of North Carolina at Chapel Hill.

2. Searching Medical Literature for the Best Evidence
This tutorial is designed to teach you how to select and search resources to locate evidence-based information. The web address links to the University of North Carolina at Chapel Hill.


1. International Journal of Nursing in Intellectual and Developmental Disabilities

Go to and click on Journal in the top tab menu.
The organization provides FREE full text articles, current and archived.

2. Science Direct
As a Guest User, you will have access to over two-thirds of the world's science journals' Tables of Contents, Abstracts, and searches, and you can purchase full text articles of interest online. Sign up for journal alerts or for articles related to specific subject matter and an alert will be emailed directly to you when these are located.

3. National Library of Medicine (NLM) Gateway
This site provides thousands of easy-to-use information resources, research, journals, and clinical trials in progress. It is geared to the layperson as far as searching and finding resources. Putting in the search words "mental retardation" generates thousands of resources, from informational articles for the layperson to very clinically-based research articles.



1. Hormonal Risk Factors for Dementia in Women With Down Syndrome (1998-2003)

Go to for online access to the FREE full text research article.

2. Exercise Adherence Among Adults With Down Syndrome (1998 2003)

3. Health Status and Needs of Women With ID (1998-2003)

4. Examining the Health Status and Needs of Older Women With ID Through National Health Interview Survey Data

5. Report of research done on use of lamotrigine (Lamictal) on compulsive skin picking. Original research in Journal of Clinical Psychiatry, Sept. 2007.

6. Losing sleep may be a link to developing mental illness
This research done at Berkeley and Harvard investigates the connection between having enough sleep and subsequent depression, anxiety, and other psychiatric problems. It is fairly well accepted that mental disorders can cause sleep problems, but now the evidence may show that having sleep problems can cause mental disorders.


RESEARCH (in progress or completed)

1. Clinical Trials
This is a registry of federally and privately supported clinical research done with human volunteers. You can look up specific medications or diseases and see correlating research studies.

2. Language Development in Fragile X Syndrome

3. Utah Autism Project

4. Brain Development and Iron Deficiency

5. A Twin Study of Autism Spectrum Disorder

6. Speech Development in Children With Cerebral Palsy

7. Dietary Control of PKU With Glycomacropeptide from Whey

8. Stem Cell Therapy for Parkinson's Disease

9. Interaction Between Social Anxiety and Memory in Fragile X Syndrome

10. Atypical Neuroleptic Drugs in People With Mental Retardation/Developmental Delay

11. Genetic Aspects of Neurologic and Psychiatric Disorders

12. Akathisia in People with Schizophrenia and Mental Retardation

13. Advanced Grandparental Age as a Risk Factor for Autism

14. Vitamin D Metabolism and Williams Syndrome